Aktuella publikationer

Här listas QRC:s vetenskapliga publikationer samt ett urval av aktuella publikationer om kvalitetsregisterforskning och publikationer baserade på material från QRC-anslutna kvalitetsregister.

QRC:s vetenskapliga publikationer

QRC Stockholms vetenskapliga publikationer innefattar studier inom flera ämnesområden, bland annat inom hälsoekonomi, patientrapporterade utfallsmått, förbättringsarbete och kvalitetsregisterforskning. Forskningen genomförs av QRC:s forskningsenhet vid institutionen Lärande, Informatik, Management och Etik (LIME), Karolinska Institutet (KI).

Collection and use of EQ-5D for follow-up, decision-making, and quality improvement in health care – the case of the Swedish National Quality Registries (länk till Journal of PatientReported Outcomes)
Journal of Patient-Reported Outcomes (2020) 4:78

Electroconvulsive Therapy in Depression – Improvement in Quality of Life Depending on Age and Sex (länk till Journal of ECT)
Güney P, Ekman CJ, Hammar Å, Heintz E, Landén M, Lundberg J, Nordanskog P, Nordenskjöld A. The Journal of ECT: February 27, 2020 – Volume Publish Ahead of Print – Issue – doi: 10.1097/YCT.0000000000000671.

Whom should we ask? A systematic literature review of the arguments regarding the most accurate source of information for valuation of health states (länk till PubMed)
Helgesson G, Ernstsson O, Åström M, Burström K. Qual Life Res. doi: 10.1007/s11136-020-02426-4 [Epub ahead of print].

Determinants of quality of life in pediatric- and adult-onset multiple sclerosis (länk till PubMed)
McKay K, Ernstsson O, Manouchehrinia A, Olsson T, Hillert J. Neurology, 2019, doi: 10.1212/WNL.0000000000008667.

Influence of elicitation procedure and phrasing on health state valuations in experience-based time trade-off tasks among diabetes patients in China (länk till PubMed)
Hao S, Heintz E, Helgesson G, Langenskiöld S, Chen J, Burström K. Qual Life Res, 2019, doi: 10.1007/s11136-019-02292-9.

Ethical aspects of diagnosis and interventions for children with fetal alcohol spectrum disorder (FASD) and their families (länk till PubMed)
Helgesson G, Berilsson G, Domeij J, Fahlström G, Heintz E, Hjern A, Nehlin Gordh C, Nordin V, Rangmar J, Rydell AM, Wahlsten VS, Hultcrantz M. BMC Med Ethics, 2018; 19(1): 1.

Short-term resource utilization and cost-effectiveness of comprehensive geriatric assessment in acute hospital care for severily frail elderly patients (länk till PubMed)
Ekerstad N, Karlson BW, Andersson D, Husberg M, Carlsson P, Heintz E, Alwin J.  J Am Med Dir Assoc, 2018; 19(10): 871-878.

The Swedish RAND-36 Health Survey – reliability and responsiveness assessed in patient populations using Svensson’s method for paired ordinal data (länk till PubMed)
Orwelius L, Nilsson M, Nilsson E, Wenemark M, Walfridsson U, Lundström M, Taft C, Palaszewski B, Kristenston M. J Patient Rep Outcomes, 2017; 2(1): 4.

The external validity of mapping MSIS-29 on EQ-5D among individuals with multiple sclerosis in Sweden (länk till PubMed)
Ernstsson O, Tinghög P, Alexanderson K, Hillert J, Burström K.  MDM Policy Pract, 2(1): 2381468317692806.

Creating a culture of health: evolving healthcare systems and patient engagement (länk till PubMed)
Lindblad S, Ernestam S, Van Citters AD, Lind C, Morgan TS, Nelson EC.  QJM, 2017; 110(3): 125-129.

Boosting quality registries with clinical decision support functionality*. User acceptance of a prototype applied to HIV/TB drug therapy. (länk till PubMed)
Wannheden C, Hvitfeldt-Forsberg H, Eftimovska E, Westling K, Ellenius J. Methods Inf Med, 2017; 56(4): 339-343.

Is the acute care of frail elderly patients in a comprehensive geriatric assessment unit superiort o conventional acute medical care? (länk til PubMed)
Ekerstad N, Karolsson BW, Dahlin Ivanoff S, Landahl S, Andersson D, Heintz E, Husberg M, Alwin J. Clin Interv Aging, 2017; 12: 1-9.

Patient focused registries can improve health, care, and science (länk till PubMed)
Nelson EC, Dixon-Woods M, Batalden PB, Homa K, Van Citters AD, Morgan TS, Eftimovska E, Fisher ES, Ovretveit J, Harrison W, Lind C, Lindblad S. BMJ, 2016; 354:i3319.

Patient reported outcome measures in practice (länk till BMJ)
Nelson EC, Eftimovska E, Lind C, Hager A, Wasson JH, Lindblad S.  BMJ, 2015; 10: g7818.

Continuous innovation: developing and using a clinical database with new technology for patient-centered care – the case of the Swedish quality register for arthritis (länk till PubMed)
Ovretveit J, Keller C, Hvitfeldt Forsberg H, Essén A, Lindblad S, Brommels M.  Int J Qual Health Care, 2013; 25(2):118-24.

Kvalitetsregisterforskning och publikationer baserade på QRC-anslutna register

Här listas ett urval av aktuella publikationer om kvalitetsregisterforskning och publikationer baserade på material från QRC-anslutna kvalitetsregister. Fler artiklar kan också hittas via kvalitetsregistrens egna webbplatser eller genom direkt kontakt med respektive register.

Om du vill publicera information om och länkar till nya studier på QRC:s webbplats, kontakta lena.soderqvist@sll.se, kommunikatör på QRC.

Prevalence of sustained remission in rheumatoid arthritis: impact of criteria sets and disease duration, a Nationwide Study in Sweden (länk till PubMed) 
Einarsson JT, Willim M, Ernestam S, Saxne T, Geborek P, Kapetanovic MC

Deep venous thrombosis and pulmonary embolism after anterior cruciate ligament reconstruction: incidence, outcome, and risk factors (länk till PubMed)
Kraus Schmitz J, Lindgren V, Janarv PM, Forssblad M, Stålman A 

Reducing night-time discharge from intensive care. A nationwide improvement project with public display of ICU outcomes (länk till PubMed)
Parenmark F, Karlström G, Nolin T, Fredrikson M, Walther SM 

Uptake of rheumatology biosimilars in the absence of forced switching (länk till PubMed)
Di Giuseppe D, Frisell T, Ernestam S, Forsblad-D’Elia H, Lindqvist E, Lindström U, Sjöwall C, Askling J

Introduction of the second-generation direct-acting antivirals (DAAs) in chronic hepatitis C: a register-based study in Sweden (länk till PubMed)
Frisk P, Aggefors K, Cars T, Feltelius N, Loov S, Wettermark B, Weiland O 

Pharmacovigilance in juvenile idiopathic arthritis patients treated with biologic or synthetic drugs: combined data of more than 15,000 patients from Pharmachild and national registries (länk till PubMed)
Swart J, Giancane G, Horneff G, Magnusson B, Hofer M, Alexeeva Е, Panaviene V, Bader-Meunier B, Anton J, Nielsen S, De Benedetti F, Kamphuis S, Staņēviča V, Tracahana M, Ailioaie LM, Tsitsami E, Klein A, Minden K, Foeldvari I, Haas JP, Klotsche J, Horne AC, Consolaro A, Bovis F, Bagnasco F, Pistorio A, Martini A, Wulffraat N, Ruperto N

Effect of dolutegravir in combination with Nucleoside Reverse Transcriptase Inhibitors (NRTIs) on people living with HIV who have pre-existing NRTI mutations (länk till PubMed)
Sörstedt E, Carlander C, Flamholc L, Hejdeman B, Svedhem V, Sönnerborg A, Gisslén M, Yilmaz A

A Controlled Comparison of Microfracture, Debridement, and No Treatment of Concomitant Full-Thickness Cartilage Lesions in Anterior Cruciate Ligament-Reconstructed Knees: A Nationwide Prospective Cohort Study From Norway and Sweden of 368 Patients With 5-Year Follow-up (länk till PubMed)
Ulstein S, Årøen A, Engebretsen L, Forssblad M, Lygre SHL, Røtterud JH

Sweden, the first country to achieve the Joint United Nations Programme on HIV/AIDS (UNAIDS)/World Health Organization (WHO) 90-90-90 continuum of HIV care targets (länk till PubMed)
Gisslén M, Svedhem V, Lindborg L, Flamholc L, Norrgren H, Wendahl S, Axelsson M, Sönnerborg A